'Hariho abandi babifite nabi:' Umuryango wa Honesdale urashaka umuhungu w'imyaka 10 y'impyiko
Ku wa kabiri, tariki ya 16 Mata 2024, Jake Algerio, ufite imyaka 10, ukomoka mu gace ka Honesdale, yishimira igihe muri Parike Nkuru ya Honesdale mu Ntara ya Wayne, muri Pennsylvania. , Pennsylvania, arashaka cyane impyiko nshya y’ishuri rya Lakeside umunyeshuri wiga mu mwaka wa kane mu karere ka Wayne Highlands School District. Kugira ngo ufashe Jake, sura ibitaro byabana bya Philadelphia (CHOP) kurubuga rwa https://tinyurl.com/fkdea2yf cyangwa uhamagare 1-877-ORGAN50 (674-2650)
Hamwe n'inshuti ye magara bakurikiranira hafi, Jake Algerio yazengurutse ameza ya picnic aho nyina Brianne yari yicaye.
Hafi aho, umukino munini wa tic-tac-toe wahamagariwe ibikoresho byo gukiniraho, bituma abanyeshuri bo mu ishuri rya Lakeside bo mu kiciro cya kane bahita bareka kwiruka inyuma yabo.
Urwenya rwabo rwumvikanye ubwo basiganaga berekeza kuri imwe mu mashusho ya Parike Nkuru ya Honesdale, inseko yabo irabagirana n'ibyishimo byuzuye byo mu bwana.
Amosozi yarize igihe Algerio yitegereza umuhungu we.
Umufasha w’ubuvuzi wemewe mu kigo cyitwa Wright Health for Community Health Hawley Practice mu ntara ya Wayne, muri Pennsylvania agira ati: “Nishimiye ko ntigeze numva abaganga. “Bamuhaye amezi abiri yo kubaho. Turi mu myaka 10. ”
Intwali kurugamba atigeze ahitamo, Jake akomeza kwihangana mubibazo byubuvuzi bidahwema.
Impyiko - imwe, santimetero imwe gusa cyangwa ntoya kurenza uburebure bwa tablet aspirine; ikindi kimwe cya kabiri cya santimetero - mumureke yishingikirize kuri dialyse ya peritoneal nijoro, kandi akeneye cyane impyiko nshya.
Catheter yashyizwe mu nda yorohereza dialyse yamasaha atanu mugihe asinziriye, akayungurura uburozi mumubiri we uhereye kumurongo wurukuta rwinda. Biratandukanye cyane nimpyiko zingana zingana zumwana wo mu kigero cye, apima santimetero 9.42.
Ibitaro, kwandura, kubagwa, no gutenguha kwatewe impyiko zananiranye mu myaka itanu ishize - buri gusubira inyuma byerekana imbaraga ziwe zitajegajega, ikigeragezo cyose cyakozwe mu mwenda w'ubuzima bwe bwa buri munsi.
Yizeza nyina ati: "Hariho abandi babifite nabi", umwuka we ntucika nubwo umwijima uzengurutse.
Ku wa kabiri, tariki ya 16 Mata 2024, Jake Algerio, ufite imyaka 10, wiga mu mwaka wa kane mu ishuri ry’ibiyaga bigari mu karere ka Wayne Highlands, yishimira ibikoresho byo gukiniraho muri Parike ya Honesdale Centre mu Ntara ya Wayne, muri Pennsylvania. inda yorohereza ijoro rye, amasaha atanu ya peritoneal dialyse.
Kugira ngo ahumurize abo ahura nabo bahanganye, Jake akunze kuzamura ishati kugirango yerekane umuyoboro uri munda, asangira amagambo atera inkunga yavutse murugendo rwe.
Mu cyumweru gishize, ku ya 16 Mata, izina rya Jake ryongeye gushyirwa ku rutonde rw’umuryango w’abibumbye rishinzwe kugabana ibihingwa (UNOS) ku rutonde rw’abategereje kwimurwa - rwinjira mu bantu barenga 104.000, barimo abana 2100 bongeyeho, bakeneye umuterankunga, nk'uko bitangazwa na Donate Life America.
Algerio n'umugabo we, Don Sweeley Jr., bakoze feri yerekana impamyabumenyi y'umuterankunga ku bahungu babo: umuntu ufite ubwoko bw'amaraso A + cyangwa O +, ufite ubuzima bwiza, ubuzima bwiza muri rusange, nta kibazo gikomeye cy'ubuvuzi afite, kandi nta yabazwe bikomeye mu nda. Kugira ngo ufashe Jake, sura ibitaro byabana bya Philadelphia (CHOP) kurubuga rwa https://tinyurl.com/fkdea2yf cyangwa uhamagare 1-877-ORGAN50 (674-2650).
Algerio w'imyaka 45 wo muri Honesdale agira ati: “Arimo akora uruhare rwe, nkora uruhare rwanjye.”
Abakozi ba Algerio muri The Wright Centre nabo baraterana inyuma ya Jake, basangira flier ninkuru ye kugirango bamufashe kubona umukino uhuje.
Algerio watangiye gukorera mu kigo cya Wright mu myaka hafi ine ishize, haba mu nama yabereye i Scranton na Clarks, agira ati: “Jake afite ubwoba bwo guterwa.” “Ndamubwira nti: 'Turagerageza kukugira mwiza.'”
Urugendo rw'ubuvuzi rwa Jake rwatangiye mbere yo kuvuka, kubera ko inzitizi ikomeye y'uruhago yugarije ubuzima bwe muri utero. Nyuma yo gupima amahitamo, Algerio, utwite ibyumweru 20, yabazwe byibuze kugira ngo ashyiremo uruhago - catheters yinjijwe mu nda ndetse no mu ruhago rwa Jake - bituma inkari zikomera.
Brianne Algerio n'umugabo we, Don Sweeley Jr., bombi ba Honesdale, muri Pennsylvania, bakoze feri yerekana impamyabumenyi y'impano z'umuhungu wabo Jake w'imyaka 10.
Icyakora, ingorane zarakomeje. Mugihe cibyumweru 32, Jake yirukanye atabishaka imwe muri shunt, bisaba ko babagwa bwa kabiri kugirango ayisimbuze. Nyuma y'ibyumweru bibiri, habaye inzitizi, bituma Jake agera imburagihe ku ya 21 Nzeri 2013, mu bitaro bya Lehigh Valley - Cedar Crest. Yamaze amezi abiri akurikira mu gice cyita ku barwayi ba neonatal. Kubera ko uruhago rwe rudafite amazi, abaganga babaga bakoze inzira yigihe gito kugirango inkari ze zibe ubusa.
Guhanura ibibazo byimpyiko byagaragaye ko ari ukuri.
Ku myaka 2, Jake asabwa dialyse ya peritoneal. Kandi ku myaka 4 gusa, guhinduranya impyiko byabaye nkenerwa muri 2017, mugihe impyiko imwe yaretse gukura, ikora cyane kuri 11% yubushobozi busanzwe.
Noneho, nkuko bimeze ubu, Algerio yasabye byihutirwa umuterankunga w'impyiko ku mbuga nkoranyambaga n'ahandi.
Hagati aho, Jake yakomeje guhangana n'inzitizi z’ubuzima ziyongera, bituma ibitaro bimara igihe kirekire, harimo n’ubuvuzi bugamije gukemura ikibazo cya gemoglobine nkeya. Mugihe izo mbogamizi zagendaga ziyongera, umuryango we wahuye nubukungu bukomeye, akenshi bahatirwa gufata ibyemezo bitoroshye nko kureka imiti yingenzi no kugabanya amafunguro kugirango babone ibyo kurya bya Jake.
Amaherezo, izina rya Jake ryongewe mubitabo byabaterankunga ba UNOS. Nyuma y'amezi agera kuri atandatu kurutonde rwabategereje guhindurwa ingingo, mbere gato y’amavuko ye muri Nzeri 2019, Jake yabazwe bwa mbere impyiko mu kigo cy’ubuvuzi cya Geisinger kiri i Danville, muri Pennsylvania.
Ariko, ibibazo byavutse, biganisha ku gukuramo impyiko nyuma gato. Nubwo yari afite intege nke, Jake yijihije isabukuru y'imyaka itandatu avuye ku buriri bw'ibitaro, afungura amakarita ye n'impano, kandi yizihiza umunsi mukuru w'amavuko yateguwe n'abaforomo be.
Jake yaje gukira, yubaka imbaraga. Ku ya 7 Ukuboza 2022, yongeye gushyirwa ku gitabo cy’abaterankunga ba UNOS. Ariko, ibitaro byinshi no gusubira inyuma byagaragaye, harimo kwandura no gukomeretsa bikabije byasabye kubagwa, bigatuma izina rye ridahagarikwa kuri rejisitiri.
Noneho kuri CHOP hanyuma yongera gukora kuri rejisitiri, Algerio arasengera uwo mukino mwiza.
Agira ati: “Ku myaka ye, arabujijwe cyane. “Gusa ararushye cyane. … Ngomba kumwibutsa kugerageza kutagwa mu nda no kubona ibitagenda neza. Ibyo twanyuzemo mbere. ”
Ligue ntoya na siporo gakondo birashobora kuba bitemewe kuri Jake, ariko ishyaka rye ryukuri - no guhunga ikaze kumiti 11 ya buri munsi no kubonana kenshi na muganga - ni umukino.
Kuruhande rwibikorwa bye bisanzwe hamwe na Fortnite, Call of Duty, nibindi byinshi kuri PlayStation 4, yakiriye ibikorwa bisanzwe kubana bafite imyaka 10, kuva akora amashusho yimikino yo kuri YouTube, no gukina ninshuti cyangwa mukuru we, Ryan, imyaka 17, kugeza asetsa bashiki be babiri bato, Zoey w'imyaka 6 na Emma w'imyaka 3, no guhobera imbwa yakundaga cyane, Bell na Tony Baloney.
Nubwo yahuye n’ibibazo byinshi byubuzima, Jake yakomeje kwitangira imirimo ye yishuri, yanga gusubira inyuma y amanota, ndetse yiyigisha gutukana.
Nubwo ibyapa bya Spiderman birimbisha umuryango wicyumba cye, kubijyanye nintwari, Batman yiganje mumutima wa Jake - nubwo nyina afite umwanya wambere.
Yoroheje avuga, asangira ikintu kimwe ategereje kuri benshi nyuma yo kubona impyiko nshya: “Kubana na mama ubuziraherezo.”
Icyumweru cyanyuma cya Mata nicyumweru cyigihugu cyo guhinduranya abana, kigaragaza imbaraga zo kurangiza urutonde rwabategereje kwimura abana. Umwaka ushize, abana barenga 1.900 bahawe imiti irokora ubuzima, ihuye n'abaterankunga bagera ku 900, nk'uko bitangazwa na Donate Life America . Kwiyandikisha gutanga, sura DonateLifePA.org/register , cyangwa kubindi bisobanuro, sura DonateLifePA.org . Icyemezo cy'umuntu umwe gusa gishobora gutanga ubuzima bugera ku munani, kandi kikagira ingaruka nziza kuri 75
