Agace umuryango uhiriwe nimpano zingingo - kabiri
Umuturage wa Peckville arashimira abaganga ba Wright Centre kuba baritaye ku mpuhwe umugabo we n'umuhungu we kuko bahuye n'ibibazo byangiza ubuzima.
Umuturage wa Peckville, Patricia Desouza, ukorera mu kigo cy’ubuyobozi cy’ubuzima cy’ubuzima cya Wright, ni umuvugizi w’impano, amaze kubona abantu babiri bo mu muryango we wa hafi bafite ibibazo by’impyiko bisaba guterwa.
Kwizera kwatwaye Patricia Desouza n'umuryango we mu mezi ahangayitse yo mu ntangiriro za 2023, ubwo atari umwe ariko babiri mu bagize urugo bahuye n'ikibazo cyo kunanirwa kw'impyiko kandi bakeneye guterwa ingingo.
Nkumubyeyi, Patricia Desouza yari azi mubushake ko azitanga kugirango abe umuterankunga muzima kandi aha impyiko imwe umuhungu we mukuru Kenneth. Ariko ibyo bivuze ko umugabo we Larri, umutetsi umaze igihe kinini, yahatirwa kongera izina rye kurutonde rwabategereje kwimura urugingo rwigihugu, bigatuma arokoka kubera ineza yumuntu utazi.
Gukenera abaterankunga, harimo n'abaterankunga bazima, birahoraho. Nk’uko bitangazwa n’umuryango udaharanira inyungu uhuza ibigo (UNOS), abantu barenga 103.000 muri Amerika ubu bategereje ko hashyirwaho ingingo.
UNOS icunga gahunda yo guhindagura ingingo z'igihugu mu masezerano na guverinoma ihuriweho na leta. Iharanira guhuza byihuse kandi neza abaterankunga nabarwayi bategereje impano irokora ubuzima bwumutima, impyiko, umwijima, ibihaha, cyangwa guhuza ingingo.
Nubwo impuzandengo yo guhinduranya ingingo 117 ikorwa buri munsi muri iki gihugu, abantu nka Larri Desouza rimwe na rimwe bategereza amezi cyangwa imyaka kugirango bahamagare kuri terefone babamenyesha ko habonetse umukino kandi itariki yo kubagwa iteganijwe. Kuri bamwe, guhamagarwa ntabwo biza. Abantu bagera kuri 20 muri Amerika bapfa buri munsi mugihe bategereje ko haterwa ingingo.
Ku rubanza rwa Larri Desouza, yakiriye inshuro ebyiri zose zemewe ko yiteguye gutanga raporo ku bitaro byatewe muri Pennsylvania yo hagati, ariko nyuma yaje kumenya undi muntu uri kuri urwo rutonde watoranijwe kugira ngo yakire urwo rugingo. Patricia Desouza wo muri Peckville agira ati: “Ntekereza ko byageze aho umugabo wanjye yatakaje ibyiringiro.
UNOS and its allies, including health care leaders and concerned citizens, have been working to improve the nation’s organ donation system. Their aim is to increase organ availability and decrease transplant wait times.
Mu rwego rwo gushyigikira iyi mbaraga, ikigo cya Wright gishinzwe ubuzima bw’abaturage gikunze kwifatanya n’abunganira transplant kugira ngo bakwirakwize iki kibazo kandi gitume abantu benshi bo mu majyaruguru y’amajyaruguru ya Pennsylvania biyandikisha nk’abaterankunga, ijisho, n’inyama. Ikigo cya Wright cyitabira ubukangurambaga bwa DoNation ndetse n’umunsi w’abaterankunga ku rwego rw’igihugu (14 Gashyantare), ukwezi kwahariwe ubuzima bw’igihugu (muri Mata), n’umunsi w’abaterankunga ba Pennsylvania (1 Kanama).
Dr. Linda Thomas-Hemak, perezida akaba n'umuyobozi mukuru w'ikigo cyitwa Wright Centre for Health Health and Graduate Medical Education, agira ati: “Umuntu ku giti cye n'imiryango barashobora gutanga impano ihebuje - impano y'ubuzima - bavuga ngo“ yego ”ku mpano z'umubiri.” Ati: "Iyo wongeyeho izina ryawe mubitabo byabaterankunga mugihe ubonye cyangwa kuvugurura uruhushya rwo gutwara, cyangwa ugiye kurubuga nka organdonor.gov, uba waguye pisine y'abaterankunga kandi ushobora gusubiza amasengesho y'abantu nka Patricia na Larri. Desouza n'abana babo.
Dr. Thomas-Hemak agira ati: “Byabaye umugisha, icyubahiro, n'icyubahiro kumenya, kwita, no gukorera umuryango wa Desouza.
Patricia Desouza, imyaka 53, akora nk'umuyobozi w'ubukorerabushake mu Nama y'Ubuyobozi ya Wright Centre ishinzwe ubuzima. Yemeye gusangira kumugaragaro ibyamubayeho mumuryango we, yizera ko bishobora guhatira umuntu umwe kuvuga "yego" kwiyandikisha kubaterankunga uyu munsi kandi byashoboka ko yahindura ejo bundi.
Ubuyobozi bushinzwe umutungo w’ubuzima muri Leta zunze ubumwe z’Amerika bwerekanye ikigo cya Wright Centre cy’ubuzima bw’abaturage n’ubuvuzi bw’ubuvuzi bw’impamyabumenyi hamwe na platine ibyemezo byo kunganira no kugira uruhare mu bukangurambaga bwa DoNation bwo gutanga impano.
Avuga ati: “Urashobora kuba umwe. Ati: “Urashobora kuba uwo guha icyerekezo umuntu utabona, guha umutima umuntu ubikeneye, guha impyiko umuntu udafite imbaraga.
Yongeraho ati: “Rimwe na rimwe mu mibereho yacu, dufata ibintu nk'ukuri nk'ubuzima bwiza, kubera ko ikibazo kitareba inzu yacu cyangwa abantu dukunda.” “Ariko, iyo ubonye umuntu utazi ababara, urumva ubagiriye impuhwe. Ariko, ubanza, ugomba kubibona; ugomba kumva inkuru yabo. ”
Ngiyo amateka yumuryango wa Desouza.
'Umutwaro uremerewe'
Mu buzima bwe bwose, Kenneth Desouza, ufite imyaka 25, yagiye ahura n’ibibazo by’ubuzima no guhangana n’ibibazo. Afite imyaka 12, bamusanganye diyabete yo mu bwoko bwa 1, izwi kandi nka diyabete y'abana. Igihe yari ageze mu kigero cy'ingimbi, yari yarateje imbere icyo umuryango wize nyuma ni syndrome de neprotique, indwara y'impyiko itera kugumana amazi menshi no kwiyongera ibiro. Nyina avuga ko yahise yambara ibiro 40.
Muri icyo gihe, Kenneth Desouza yari amaze hafi umwaka mu bitaro no hanze yacyo mu gihe umuryango wagerageje kubona gahunda nziza yo gusuzuma no kuvura. Amaherezo, mu gihe Patricia Desouza, nyiri uruganda rukora isuku, yari ku kazi umunsi umwe, yabwiye umukiriya ko arimo gushaka umuganga w’imbere mu rwego rwo hejuru. Umukiriya numugabo we bahise bamushyira mubikorwa na Wright Centre yubuzima bwabaturage, ndetse bamufasha gutegura gahunda kumunsi ukurikira.
Patricia Desouza, ibumoso, ashimira Dr. Linda Thomas-Hemak, perezida akaba n’umuyobozi mukuru wa The Wright Centre for Health Health and Graduate Medical Education, kuba yaratanze ubuvuzi kandi akanatanga ibyiringiro byazamuye umuhungu we w'imfura kuko yakemuye ibibazo by’impyiko byangiza ubuzima.
Yibuka ati: “Natekereje nti: 'Nibyo, ni uwuhe muganga ugiye kureba umuhungu wanjye saa kumi n'ebyiri ku wa gatanu?' “Ariko nyuma haje Dr. Linda Thomas-Hemak.”
Muri iyo gahunda, Dr. Thomas-Hemak, perezida akaba n’umuyobozi mukuru w’ikigo cyita ku buzima bw’abaturage n’ubuvuzi bw’ubuvuzi bw’ubuvuzi, yasobanuye neza uko Kenneth Desouza ameze, amwizeza ko ashobora kuvurwa, kandi, cyane cyane, atanga amagambo make kuri we. intego y'ubuzima yumvikanye n'imyizerere y'umuryango.
Patricia Desouza agira ati: “Sinari nzi uburemere nari mfite mu buzima bwanjye kugeza icyo gihe, kuko hari umutwaro wankuye ku rutugu. Numvaga nduhutse. ”
Nyuma gato y'urwo ruzinduko rwa mbere, we n'umugabo we na bo babaye abarwayi bo mu kigo cyita ku buzima bw'abaturage.
Inyenyeri ikurikirana?
Umugabo na se Larri Desouza, byavumbuwe icyo gihe, na we yari afite igabanuka ry'imikorere y'impyiko, bikaba bishoboka ko byatewe no gukoresha igihe kirekire imiti ya goutte. Impyiko ye ntikigishungura neza amaraso ye. Yatangiye dialyse akomeza hamwe nubuvuzi butatu-buri cyumweru mugihe cyimyaka irindwi. Bimaze kugaragara ko azakenera impyiko.
Umwuka we urahungabana. Ibiro bye byarashize.
Bitewe n’umubyimba w’umubiri wa ballon (BMI), hamwe n’ingaruka ziterwa n’ingaruka zatewe, bamubwiye ko kubagwa transplant bitakibaye ikibazo kugeza aguye ibiro. Umuganga we w’ibanze, Dr. Jignesh Sheth, umuyobozi mukuru w’ubuvuzi mu kigo cyita ku buzima bw’abaturage cya Wright, yamenye ibintu bigoye byagize uruhare runini mu kongera ibiro bya Larri Desouza kandi amuhagarara iruhande igihe yiteguraga kubagwa by gastric.
“Dr. Sheth yaramutahuye. ”- Patricia Desouza. “Dr. Sheth ntiyigeze amucira urubanza. ”
Nyuma yo kubagwa ibiro, Larri Desouza yashoboye kugabanya BMI maze yinjira kurutonde rwabategereje guhindurwa. Hariho ibinyoma bike byatangiye mugihe cyibyumweru bike. Hanyuma, mu ntangiriro za 2023, amaherezo yaje guhamagara. Impyiko yari ihari. Kandi byari kuri we.
Yagiye mu kigo cy’ubuvuzi cya Geisinger, Danville, aho itsinda ryatewe ryabazwe neza.
Nyuma y'amezi gusa, Larri Desouza yasuye bene wabo muri Berezile kandi yitoza guhatanira imyaka ye mumarushanwa yo gusiganwa ku maguru. Kuri we, birashoboka ko ari amahirwe yo kwibutsa iminsi ye nkumukinnyi wiga mumashuri yisumbuye. Amaherezo ararekuwe kuri gahunda isaba dialyse. Arashobora gutegura ejo hazaza.
Patricia Desouza agira ati: “Arashobora kongera kurota.”
Kwitegura 'kuguruka'
Uyu mwaka, umuryango wibanze kuri Kenneth Desouza utegereje kubagwa. Imikorere y'impyiko isa nkaho yarushijeho kuba mibi kubera guhangana na COVID-19, bivuze ko nawe yari akeneye gutangira dialyse.
Patricia Desouza agira ati: “Mu gihe gito, nari mfite abantu babiri mu nzu bakora dialyse. Ati: “Twanyuze muri byinshi. Ariko buri gihe twizeraga ko Imana igiye kutunyuramo. Turi umuryango ufite kwizera. ”
Nk’uko byatangajwe na nyina, guhera mu mpera za 2023, Kenneth Desouza yari ategereje ijambo ry'umuntu utanga ubwishingizi bw'indwara mbere yo kongera izina rye ku rutonde rwo gutegereza kwimura ingingo. Niba byose bigenda nkuko byari byateganijwe mu mezi make ari imbere, hazamenyekana umuterankunga, kandi kubagwa kwe bizakorerwa mu bitaro bya kaminuza ya Pennsylvania muri Philadelphia.
Patricia Desouza numukino ukwiye wo guha umuhungu we urugingo. Ariko hasigaye kurebwa niba ari we uzahabwa impyiko cyangwa niba, binyuze mu nzira yiswe impyiko zombi - cyangwa guhana impyiko - impyiko nyinshi z’abaterankunga bazima zizahindurwa ku buryo buriwakiriye yakira transplant ihujwe cyane itanga the amahirwe menshi yo gutsinda.
Kugeza icyo gihe, Kenneth Desouza akusanya imbaraga zo gukomeza gukora buri cyumweru nk'umuyobozi wa sitasiyo ya lisansi ari nako atanga umusanzu mu itorero rye, Inteko y'Imana ya Peckville. Umuhanzi w'umuhanga, acuranga ibikoresho 10, birimo piyano, ingoma, na gitari.
Nyina agira ati: “Namubwiye nti: 'Sinshobora gutegereza ko uhindurwa.' "'Kuberako niba ushobora gukora ibyo ukora mugihe unyuze muri dialyse, ndashobora gutekereza gusa uko uzaguruka utayifite." "
Mubitekerezo bya Patricia Desouza, gutanga ingingo, haba nkumuterankunga muzima cyangwa nyuma yurupfu, ni ugusangira impano wahawe umugisha no kwemerera abandi kugera kubyo bashoboye. Yabigereranije n'abiruka “gutambutsa inkoni.”
“Rimwe na rimwe wasangaga wiruka mu isiganwa ryawe; wakoze inzira yawe. Noneho wahaye amahirwe umuntu wo kuyobora isiganwa rye no kurangiza amasomo yabo ". Ati: “Naho ku baterankunga bazima, murayobora isiganwa hamwe.”
Shaka amakuru menshi, cyangwa wiyandikishe nkumuterankunga wingingo, usuye DonateLifePA.org cyangwa OrganDonor.gov .
